Autism is a lifelong disorder, so what that means is that a
child that has autism does not outgrow it. You cannot waaaaaait, and after some
years, there will be no trace of autism in the child.
So if you don’t wait, what will you do?
The theme for this year’s World Autism Awareness Day was
Towards Self-Determination and Autonomy. To achieve this, it’s important to
know and enforce the right of our children on the autism spectrum.
Did I say children? I actually mean people on the spectrum;
children, adolescents, young adults and adults on the autism spectrum. As
established, although autism starts at childhood, it continues throughout the
lifetime of the individual.
I digress… We are talking about RIGHTS of people on the
spectrum. And throughout this autism month, I’ll be sharing the different
rights that they have, that should be enforced for them to achieve
self-determination and autonomy. And we are starting with RIGHT TO EDUCATION.
Well, as an educator, this had to be the first topic.
All children have a right to education, at least that’s what
the Nigerian Constitution and the Child’s Right Act say. In fact, do you know that
the constitution clearly states that children with special needs have a right
to education? Well, yes it does.
It’s one thing to have it on paper, it’s another thing to
enforce it. So what are we going to do about it?
First of all, we need to acknowledge that children living
with autism in Nigeria have a right to be educated, to go to school.
There are special schools dedicated to teaching and providing
therapy for children with autism and related disorders across the country. We
don’t have enough, but we celebrate the few people that have committed
themselves to the work, providing therapy for these dear ones. There are different
types of therapy; behaviour therapy, speech and language therapy, occupational
therapy, music therapy, and physical therapy are the basic therapies provided
at most centers. The academics of the children are not ignored, so based on
each child’s developmental level, they are taught in a way that they will
understand.
For centers that have teenagers and adults on the spectrum,
vocational skill training is very important. This is important for building an
independent adult. I know 2 young adults that have been exposed to training in
office skills, including filing, photocopying, printing, to mention a few. I
have seen people on the spectrum take interest in carpentry, leather works, art
works, and basket weaving.
Activities for daily living (ADL) is part of the training
from children to adults, taught at each pupil’s level. While a child may be on
the level of pulling down his shorts in the bathroom, an adult may need to
learn to clean the bathroom. While a child’s need is to feed independently, an
adult may need to learn to cook without supervision. ADL is tailored to meet
the needs of each individual.
Apart from special schools, there are mainstream schools that
support children with special needs, including autism. The school is expected
to have a Special Educational Needs (SEN) Department, designed to meet the
needs of each child with special needs in the school. Some children with autism
have facilitators that stay with them in class. This is referred to as
Inclusive Education or Inclusion.
Recently, I met a school owner who did not know that children
with autism could go to a mainstream school. And I know that there are many
other school owners or directors that do not know that children with autism can
go to mainstream schools.
One major reason I advocate for inclusion in schools is
because it encourages an inclusive society, by teaching neurotypical children
that children with special needs are not less than them, and so they have
rights just like them. When neurotypical children think that children with
special needs have to be segregated, how do we convince them as adults that it
is okay to work in the same company as, or employ an individual with autism?
Working in an inclusive classroom, I have seen children and
teenagers support their classmates that are on the autism spectrum. Without having
a sibling with autism, they have learnt to love and accommodate other children
that are different from them, but desire love and support just like them.
Another important reason I encourage schools to practice inclusive
education is that, having worked in special schools for children with autism, I
have actively been involved in preparing children on the spectrum for mainstream
education. When we realize that a child can transit to mainstream, some parents
have had challenges finding mainstream schools for their children. Some schools
would admit the child without providing any form of support for the child,
causing the child to regress.
It is important to note that special schools are not dumping
grounds for children with autism; at special schools they are taught and
groomed, and often times prepared for mainstream education. It is therefore
important that we encourage mainstream schools to learn what it takes to
provide special education for children with autism, and provide quality
education for these children.
Why should they bother, you ask?
Because children with autism have a RIGHT TO EDUCATION, not
just any education, but QUALITY EDUCATION.
I have an old article on the blog (ninety-nine or one) about
the need for inclusive education. Click here to read it.
Thank you.
Great article you've got there. I find it quite revealing.
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